I just thought I would let you all know, I am not updating the blog much as it is currently very difficult to type. I am wearing a wrist splint on my left hand, which leaves me typing with one hand. I am going to hand therapy twice a week and hopefully I will be better with a few weeks. When I get it off, I will update more. I hope you all can enjoy your fall as much as we are!
Good Morning! Today, October 1st, is the first day of Rett Syndrome Awareness Month. Rett Syndrome is a devastating neurodevelopmental disorder that happens almost exclusively in females. Girls develop typically from birth to 6 - 18 months of age. ... At some point after at least 6 months of age the effects of this syndrome begin to ravage our daughters. Our sweet Claire lost the ability to use her hands to feed herself over Thanksgiving 2007, weeks after she turned 2. The only word she said was Daddy, something we have not heard in years. She cannot tell mommy why she is so sad or when something hurts her, she cannot tell her daddy if something scares her, she cannot tell Gracie that she is her best friend. What she can do is look into your eyes, that look speak volumes, with that look she tells you THANK YOU and I LOVE YOU. When she giggles you can't help but giggle right along with her. She is determined. She is strong. She is happy. She, Miss Claire Olivia English is pure light, love and joy, our angel sent straight from heaven. Please help us spread the word and help us find a cure so that my beautiful girl can do all that she cannot do at this time.