tag:blogger.com,1999:blog-6041394000815849976.post5320880789854163393..comments2023-03-29T11:41:40.288-07:00Comments on An Organic Experience: The Irony of ChristmasColleenhttp://www.blogger.com/profile/03696326541180487827noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-6041394000815849976.post-74841732556979995192010-12-13T06:22:44.111-08:002010-12-13T06:22:44.111-08:00Thanks guys! I did recover the milk, I am still lo...Thanks guys! I did recover the milk, I am still looking for my sanity and something tells me that when the holiday passes I still might not find it, oh well!Colleenhttps://www.blogger.com/profile/03696326541180487827noreply@blogger.comtag:blogger.com,1999:blog-6041394000815849976.post-26122433251933910092010-12-11T20:50:34.385-08:002010-12-11T20:50:34.385-08:00Ha. Love Erica's tactic.
We had a church Chr...Ha. Love Erica's tactic. <br /><br />We had a church Christmas party tonight. They had dinner and then ushered all the kids off to another room to work on crafts while the parents listened to a musical program. Since I was part of the program, that meant Ryan watched Leah. Nothing for her to do in the craft room. Kind of stinks. But, I'm starting to try to do what Ann Marie talked about - just figure out what works for us. Make our own traditions and experiences. Leah still enjoys things even if she can't participate hands-on. last year was bad and i'm determined to have this year be much better. no breakdowns (for me) in the middle of the family room on christmas morning. no, sir. not this year. <br />Now i'm rambling. can't wait to see you soon!mjhttps://www.blogger.com/profile/09141031502595666446noreply@blogger.comtag:blogger.com,1999:blog-6041394000815849976.post-10550837294191294652010-12-11T17:28:28.023-08:002010-12-11T17:28:28.023-08:00Agree. We don't do the Santa thing but that w...Agree. We don't do the Santa thing but that was before rett. That helps. I think it also helps that such a grand miracle happened on the 1st Christmas, our savior came to the world - gives me hope of other miracles happening around the same time. I think I could deal with the disability of rett if we didn't have the pain - we LOVE to decorate our tree every year, just our little family, turning on Christmas music and putting lights and ornaments up - unfortunatly that tradition was squashed with a 2 hour screaming fit. I try not to fit too much into the Holiday, try not to over extend ourselves, not get my hopes up. We never did have a Christmas without rett since Annie's birthday is in early January and as sad as that sounds, I think it helps - she's never been able to open Christmas presents so we don't feel like it's been taken away. Ditto with Zenaida, I just stay out of the way. HUGS!!!The MacDonald Familyhttps://www.blogger.com/profile/12121715561800745719noreply@blogger.comtag:blogger.com,1999:blog-6041394000815849976.post-47210745550263443762010-12-11T13:58:24.365-08:002010-12-11T13:58:24.365-08:00Yes, it hard here, too. We are trying to start tr...Yes, it hard here, too. We are trying to start traditions for both kids but its hard to make them meaningful for both of them. I agree that so many of the Christmas things I remember doing as a kid aren't so good for Abby. Tonight we are going to look at Christmas lights. Maybe they will both like it, or maybe they will fall asleep and will be up all night. Who knows? I guess we'll just do the best we can and we'll find those traditions that are special for our girls along the way. How to make kids understand the birth of Christ isn't easy either. <br /><br />And, yeah, I fake it too. This time of year is just tough for so many people. <br /><br />Thanks for sharing. Give me a call soon!Ann Mariehttps://www.blogger.com/profile/00363526402404082752noreply@blogger.comtag:blogger.com,1999:blog-6041394000815849976.post-50176199600431896712010-12-11T10:01:01.565-08:002010-12-11T10:01:01.565-08:00For some reason this year has been more of a chall...For some reason this year has been more of a challenge than last year. I feel the same way when you say "I guess I just don't like that the way we go about celebrating so often excludes our girls because of their disability". I just stay out of the way for the most part.Zenaidahttps://www.blogger.com/profile/11963991476126957854noreply@blogger.comtag:blogger.com,1999:blog-6041394000815849976.post-78895302956436632902010-12-10T20:56:25.961-08:002010-12-10T20:56:25.961-08:00Fake it! I have gotten SUPER good at it!
I alway...Fake it! I have gotten SUPER good at it! <br />I always get weepy around this time too. memories of my long gone parents and happier times get to me, and then there is rett. <br />I know that Im VERY grateful to have you to help me through it-as I will do for you. always here for you! glad we could chat...see you soon! yay!Ericahttps://www.blogger.com/profile/17851509745425295624noreply@blogger.com